Friday, June 22, 2012

Post-Miscarriage Beta #1

This morning I visited my good ol' small town medical center, where I am recognized, most likely as that bereft woman who has been coming in for repeat beta hcg blood work since January.  I cannot express just how much I would rather have blood drawn at my RE's office.  My repeat betas would not be unusual, arouse suspicion and curiosities or warrant questions or comments.  At least there was a new person at check-in this morning who did not remember my name.  The phlebotomist with the ring that says "Dad" called me back this morning.  I pulled up my sleeve to offer the 'easier' vein and bit my tongue when I saw he was not going to use the butterfly needle.  He inserted the needle, moved it around a bit, moved it around a bit more, sighed and when I looked at my arm there was no blood flowing.  He took the needle out.  Repeat with my other arm.  He asked me if I was dehydrated.  If I had low blood pressure.  Then said, "I know the last time I drew your blood I didn't have any problems."  Great.  Even he remembers me.  I attempted to persuade him to try the good vein again but instead, for the first time today, I had blood drawn from a vein in my wrist.   I left partially mummified with green tape covering my poke marks.

Geez.

It has been six days since the miscarriage and my hcg levels are at 1,210.  Higher than I was anticipating.  This number also explains my still swollen breasts.  The one symptom that still lingers.

It is difficult not to compare every detail from each miscarriage.  I keep hearing myself interpret every clot, symptom, test result with, well, with my last miscarriage...

I haven't bled as much or even as red as I expected, which has me a little worried that it is not quite over yet.  For the most part it seems that things are already ending.  Other than the hour of passing large clots and red blood, the bleeding has been more like a light period (of brown??) As of today I am only spotting.

If the bleeding is in fact coming to an end, next week I will start exercising again.  There is also sex to be had.  

In two weeks I will have another beta.  In two weeks we will also have "The Discussion" with the RE, where we will discuss genetics, immunology, next steps and new protocols.

I kind of wish now that we had not done the genetic and immune testing (after getting the bill and having insurance reject coverage).  I now feel indifferent to them both and wonder if IVF with CCS would provide more answers, or more useful answers, than the blood tests.  We'll see.   They could very well come back with abnormalities that will completely change the game. 

9 comments:

D said...

Going in for regular blood draws after a miscarriage is so awful. I feel like the phlebotomists look at you with such pity. Sometimes they try to make smalltalk and that just seems to make it all worse. I hope your next beta is negative so you don't have to continue with that. Hugs.

Sandy said...

I'm so sorry you have to go through this! Sending hugs your way!

K said...

Hang in there. I've been in your shoes for all of this, and I know it isn't fun. They were not able to grow chomosomes for 2 of the miscarriages I had tested...so my doc had the wax blocks containing the DNA sent out to try and get answers. I now wish I didn't do it and just left it along. I'm so tired of tests. Hang in there...

JJ said...

Thinking of you Jill. I hated so much getting stuck so many times after my miscarriage. It's just not fair...

Hopeful1 said...

I'm so sorry your having to go through all this. I hope you get some answers with the CCS testing. I'm thinking that Dr H may want us to do the same thing with our already frozen blasts. Im thinking that would be way too much money I'm sure.

I'd also like to do the extensive immune testing but not sure how much that would cost, would you mind me asking how much?

Hopeful1

Anonymous said...

Sorry to hear you are going through this. I'm sending you an e-hug :)

Elizabeth :: Bébé Suisse said...

There are places one can go where it is nice to be a regular and to be remembered, and then there are places where it is not. This falls firmly into that latter category. I'm so sorry you have to go through this, again.

Alex said...

How awful to have to go through all this - again. Sending you love...

jill's infertility document said...

Hopeful1, regarding the cost of immune testing: I have not yet received the itemized statement yet so I can't give you many details, unfortunately, but I think the immune testing for clotting disorders only (and not the entire panel) was around $200 and not covered by my insurance. The bill also included Chromosome Karyotyping, which I do know is around $400 per person. Not sure what the total cost of complete immune testing is. Perhaps someone else here knows?